Archive | May, 2015

The one thing I wish I could tell every depressed autistic child

enduranceSince starting Autcraft, I’ve talked to a lot of depressed autistics, mostly children. Many of them were suicidal. This is not something I recommend for most people to ever try. It is a very heavy burden that can weigh heavy on your heart after a while.

I find that this happens a lot for me because I am the ideal candidate for this to happen to. I’m an autistic adult who’s still a kid at heart and once was a depressed autistic kid just like them. To say that I can relate is a massive understatement.

For those of you that watch The Flash, the new television series about the super fast superhero, you’ll totally get what I’m talking about here but if you don’t, don’t worry, I’ll try to explain. In the television show, there is The Flash who can run crazy fast but there’s also another guy, the villain, who they call The Reverse Flash. He runs even faster. The problem is, the good guys don’t know who this Reverse Flash really is until he slips up. In an effort to help The Flash run faster than he’s ever run before, he begins encouraging him by explaining to him how to reach those speeds, how to feel as the speeds take over him, how to handle the experiences he’s now going through. It was then that The Flash, our hero, realized who The Reverse Flash was because only he would know what it was like. Only someone that has shared those experiences could truly understand him.

In my case, these children that come to me to talk to me about their lives because they know who their Reverse Flash is… I can tell them what they’re experiencing, what they’re feeling and hopefully, how to get through it faster. I understand.

When they start to tell me how alone they feel, I can explain exactly what it is they’re feeling in words that they’ve never been able to before. When they say that no one understands them, I not only describe exactly how that feels for me as well but in doing so, I show them that there really is someone that understands them.

So knowing that, I’ve come to realize that there is only one common piece of advice that I give to most people that seems to help… and it’s the one thing that I wish that I could tell all young autistic children everywhere: “there’s an older you that needs you to endure this.”

When I think back to the younger me, I wish so hard that there was some way that I could just go back in time, to myself, just to tell myself, “I know it’s hard. And I know you never believe it when anyone else says it but maybe you’ll believe it from me, from yourself… endure this because it’s worth it.”

We’ve all heard “it gets better” but we all know that a child never believes that. Not when life is that bad. There is no one that can ever convince you of it. That goes double if you’re autistic. I can’t tell you why but if you are autistic, you know it.

But there is a future you, a happy you, a you that makes a difference in the world and is doing alright. And that future you, if they’re anything like me, would love nothing more than to have a chance to talk to you right now just to let you know that it’ll turn out alright, but first you have to endure this. And yes, it will suck. But as there’s a future you wanting to telling you this, you know that you can do it.

There are no time machines but even if there were, there are far too many autistic children that never give themselves the chance to meet their future selves. Perhaps if they could have, they would have seen for themselves that if only they can endure this… it will be worth it.

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Children with autism that do well are rewarded with cut backs

An autism parent recently contacted me to ask if I knew of any high schools with special autism programs because she feels that she may be pulling her children out of the school that they’re currently in. Why? Because her son, whom is getting grades of around 80%, is at risk of losing his EA (education assistant) as well as the aides that help him to get his work done, such as a keyboard since he can’t write. Why are they taking these things away from him? Because he’s getting good grades. Why is he getting good grades? Because he has these things.

A similar scenario happened for me as my own son approached the age to go to school for the first time. In the beginning we were promised a special program but as we made progress with him, that was changed to him having an EA with him in class. The following year, we were informed that he’d get no assistance at all and would be put into a regular class.

We moved.

So why are good kids making good progress being punished? Funding. The government only gives a certain amount of money to these programs and then it’s up to these programs to figure out where the money has to go. That means prioritizing.

If your child is making good progress, then the funding is “reallocated” towards another child that isn’t doing as well and therefore needs that money more. It makes sense on paper. In the real world though, with real human beings, that sounds like those at the top are being punished. It’s clearly not as simple as “he doesn’t need it as much.”

This sounds pretty terrible already but what happens when the funding gets cut and is now lower than it was before?

This is basically happening everywhere but you likely won’t hear much about it. Locally, where I am in Ontario, it’s happening right now. And even though I can link this news story to prove it, I can also pretty much guarantee that no one in Ontario (aside from the schools) knows it’s happening.

“To lose educational assistants? Those people help the most vulnerable students, the kids with learning disabilities, the kids with autism, the kids that are struggling. It’s shameful that this is what the government is doing and that they sold the people the opposite bill of goods in the election campaign.”

People are losing their services as they age out (become adults), as they make progress and as the government decides it. Services that they really need! It feels a lot like  “robbing Peter to pay Paul.”

Unfortunately there’s very little we can do. Those people at those programs can’t do anything to help even if they wanted to, which I’m sure they do. But they can’t justify continuing to give your child that money when another child might need it more.

The only real answer is adequate funding. Which seems pretty silly with all of the attention that autism has had in recent years. Most of the states in the US now include autism therapies within their insurance plans, most everyone has heard of it by now and several schools even have specially dedicated autism programs. And yet governments continue to make cuts.

The take away? If you want your child with autism to continue having services, don’t let them do well. Because the reward for doing well is punishment.

And just in case you think this isn’t a very serious and very real problem, let me leave you with these from various places and various years:

http://www.citynews.ca/2015/03/18/parents-of-autistic-kids-worried-about-ontarios-cuts-to-school-funding/
http://www.timescolonist.com/news/local/b-c-plans-to-slash-funding-for-adults-with-disabilities-1.77768
http://abc7chicago.com/society/state-funding-for-autism-program-cut-on-world-autism-day-advocate-says/612111/
http://www.clarionledger.com/story/news/2014/05/07/rankin-county-schools-abolish-autism-program-parents-angry/8806557/
http://www.sj-r.com/article/20150406/NEWS/150409621
https://www.change.org/p/don-t-cut-the-autism-program-for-middle-and-high-school-students
http://www.yukon-news.com/news/whitehorse-parent-pleas-for-more-support-for-autistic-daughter/
http://www.abc.net.au/lateline/content/2012/s3574820.htm
http://www.ctpost.com/local/article/Parents-decry-proposed-cuts-to-autism-other-6217528.php
http://omazingkidsllc.com/tag/cuts-to-autism-programs-in-oklahoma/
http://www.washingtonpost.com/local/education/parents-protest-cuts-to-autism-program-in-arlington/2014/05/14/fae086a4-db6f-11e3-8009-71de85b9c527_story.html
http://www.disabled-world.com/health/neurology/autism/schools-autism.php
http://www.kelowna.com/2009/10/28/kelowna-moms-protest-government-cuts/

 

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