Tag Archives | Autism

Do you Love Autism or Hate Autism?

By on August 23, 2010 in Autism

I have talked to quite a few people with Autism (usually more specifically Aspergers) that really love having Autism and the benefits that come with it. Although, I’ve also talked to others who absolutely detest Autism in all shapes and forms. These are usually people that do not have Autism but do have a loved one with very severe Autism, more times than not, it’s their child.

I don’t want to generalize too much, it’s just an observation. However, love and hate are two pretty intense emotions and when focused on a single subject, this can usually lead to animosity or hostility.

The more I got to thinking about it, the more I started to get hostile myself, not at either group of people but at the need to push their love or hate onto each other.

It ultimately resulted in me tweeting this: “Autism is not your sword to wield as a weapon nor for you to fall on. Love it or hate it, don’t tell others how to feel.”

I feel it’s important to share our accomplishments and our disappointments, our pride and our sorrow… but it’s very hard for someone that hates everything to do with Autism to watch someone with Autism themselves go on and on about how much they love it and how wonderful it is. Conversely, it’s very hard for someone who is very proud of their Autism to go on speaking very harshly about how life destroying it is.

I would like to suggest that you either accept their stance as their circumstances are very different from yours or politely ignore/unfollow/unfriend/leave that person and continue on with what you’re doing and let them continue on with what they’re doing.

In a perfect world, we all support each other. But sometimes we just can’t… and that’s ok. But we really don’t need to replace support with fighting. Love it or hate it, we’re all on the same side, I think.

I invite you to share, but not fight…  do you love Autism or do you hate Autism?

Comments { 4 }

Should You Really Try Every Autism Treatment Until You Find What Works?

By on August 20, 2010 in Autism

I have pretty much always told people to just try stuff until they find what works, whether it’s a diet, a medication, a therapy, an oxygen tank or even DAN. Some are far more extreme than others, some are fairly simple to do at home… no matter how different they may be, some work and others don’t.

I’ve always told people that there is not a single treatment out there that works for 100% of people and so what works for almost everyone may not actually work for you. Then again, something that seems far fetched and doesn’t get results for many may just be the key treatment you’re looking for.

However, over the last few years of researching and learning about what all is actually out there, I’ve learned to change my tune a bit… my suggestion to ‘try everything’ comes with a very bold disclaimer now: “Use common sense!!!”

Just because I say to try everything, that doesn’t mean that I want you try something that is not safe. You have to use your best judgment, which is to say, do your homework yourself.

Even if 10,000 moms (or dads in my case) out there all tell you that they swear by something, that doesn’t mean that it’s safe, much less that it works.

Lately, in the news, you may have read about the OSR#1 drug which was recently pulled off of shelves. The Autism News reported back in January about it, in an article called “OSR#1: Industrial chemical or autism treatment?”

If that doesn’t raise alarm bells, I don’t know what will. There were never any certifications or approval labels given to this drug because quite simply, it was not safe. It was finally pulled off the shelves in July, 2010. Yet, thousands upon thousands of parents not only used it but endorsed it to other parents.

Another medication that many parents have tried, and again, endorsed, is Lupron. You may have heard of it, but probably not… a well known science blog wrote about it in an article called “Why not just castrate them? The Geiers’ “Lupron protocol” metastasizes”.

This drug effectively castrates your child, cutting off hormone production in an attempt to mellow them out… much like fixing a cat gets them to stop acting so wild.

Did all of those parents do their homework on these drugs before hand? Granted, hindsight is helpful… in that there likely wasn’t as much information in the beginning but still, if you did your homework as you should, you’d at least have seen the warning signs.

And no matter how much you trust or distrust your doctors, you should be asking about these things before putting them into yours or your children’s system.

There’s a lot at work when it comes for wanting the best for our children… our own passion, our mission, our cause, community endorsement, community support, people with “doctor” before their name that simply wish to make money…. in the end, we absolutely and unquestionably can not ever let these things make us sacrifice our own common sense.

I want to ensure that my son, Cameron, grows up as healthy and happy as possible just as much as the next person but setting aside my common sense and taking big risks on the unknown is not the way to get him there.

Whether it’s a mom, a friend, a veteran ‘expert’ or even someone with a P.H.D… no matter how much you trust someone, no matter how much you really want to believe… do your own homework first, and use common sense.

Comments { 1 }

Is It “Autistic Person” or “Person with Autism”?

By on August 19, 2010 in Autism

Just when I thought we’ve pushed the bounds of “political correctness” too far with the whole “Is it a Christmas Tree or a Holiday Tree?” debate, here we go with having to stick our anal retentive noses into the Autism community.

The idea is that we should “put the person first” before the disorder. And conversely, if you say “Autistic Person” then you are putting the disorder first and somehow implying that it has more importance.

I put a little more thought into this and have wondered at the following statements:

  • Would I refer to someone as being a brunette, a brunette person or a person of brunette haired persuasion?
  • Would I mention that someone is a Canadian person or a person born of the nation of Canada?
  • Should I refer to Mr Smith as Smith whom is a Mister?
  • Should job titles start coming after the name? CEO Steve Jobs or Steve Jobs, CEO?
  • Do we stop calling someone a cancer survivor a cancer survivor and instead say “a person whom has survived cancer”?

Now, don’t get me wrong, I’m all for being politically correct so long as it’s serving a proper purpose. These include proper formalities, curbing racism and so on.

However, for the sake of knit picking your own interpretation of what you think someone else may or may not be inadvertently implying on some other level of perception… is this really what we need to spend our time and energy on?

Again, don’t get me wrong, I am not dismissing the idea of putting the person first, never have, never will.. but only in a very real, active, sense.

Finally, let me put it this way, in conclusion:

In speech, Autistic is an adjective just like any other and therefore as important or unimportant as any other… including hairy, blonde, brunette, shaven, unshaven, tall, short, fat, skinny, striped or bouncy (oops, sorry, was just watching Winnie the Pooh).

If it offends you, then YOU are the ones giving it more importance than the person by being offended by it in the first place. YOU are the one who thinks it’s more important when you hear it and YOU are the one who gives it more importance by getting all upset about it.

The person that says “Autistic Person” had never considered ever putting anything first before their child until you came along and pointed it out.

Comments { 20 }

Mario Bros Video Games As An Autism Treatment

By on August 18, 2010 in Autism

It’s no secret that Mario is a big favourite with children and has been for decades now but children with Autism may see a lot of extra benefits from playing his games, you just have to be careful which ones and for how long.

First, let me say that I suggest you stick to the Nintendo Wii. The problem solving skills and hand eye coordination that you get from other consoles is good but the unique nature of the Wii really adds a whole other level of treatment that I will discuss in a bit.

The first game that we introduced Cameron to was Mario Kart Wii, in which you drive your cart in a race against the rest of the game characters, but instead of just pressing left and right buttons, you actually hold the controller out in front of you like a steering wheel and have to rotate it left and right to turn… further more, the more you rotate it, the harder you turn. This teaches your child the severity of his actions… how to do something a little bit to get a little bit of reaction.

More so than that, it’s a great introduction to video games in general as there isn’t a lot to it beyond pressing one button and steering. And for a first timer, especially at 3 or 4 years old, pressing a button and remembering to turn a controller is about the most multi-tasking that you could expect them to handle.

Cameron went from being behind in his motor skills to being right on par with others his age and a lot of it is due to Mario Kart Wii.

The next game proved to be more harmful than beneficial and that is the Super Mario Bros Wii game where four players can play all at once, and is modelled very closely after the original game. This game is played like the old console games where you press the left and right buttons, jump button, running button and has the occasional shaking action here and there.

The problem with this game is that it has 8 worlds to conquer and even the most expert player would take a while to get through it all. Which means that if you intend on limiting your child to an hour, 2 hours… 24 hours (who does that??), it still isn’t enough to win the game and therefore turning it off means an interruption in their game.

On the bright side, this lead to us helping him master his emotions, his expectations of him when it came time to be disappointed and so forth.  But, even the most level headed and prepared Autistic can still end up in a pretty wild rage filled tantrum when you turn off something they’re right in the middle of.

Cameron’s uncle bought him Mario Galaxy 2, which really exercises his motor skills as it immerses him in some world sized problems and really flexes his 3D muscles as he’s running circles around planetoids in the sky.

The problem comes, again, with turning it off. This game can take months to finish and so you will find yourself having to turn it off right in the middle of your child’s game and facing another tantrum.

Enter Mario Party 8… the latest Mario game that Cameron received for his 5th birthday.

Cameron absolutely LOVES this game and we have yet to face a temper tantrum. Here’s why:

The Premise
Mario Party 8 is essentially a big board game with mini games at the end of each turn. You roll the dice, move your squares, try to get to the star first and then, when everyone did their turn, you play a quick 1 to 2 minute mini game.

Set Game Length = No Tantrums
The number of turns is pre-defined at the beginning of the game, so you can set your child’s game to a quick 10 turns or a very very long 50 turns. It’s up to you and how generous you are feeling. Once those turns are done, the winner is announced and the game is done. This offers the perfect opportunity to pack it up until next time without any harsh interruptions.

Making and Allowing Choices
Instead of being forced in Mario, you get to choose from a rather large list of characters. Your child gets to choose their character, let friends choose theirs and even choose who the computer will be. This teaches your child that not everyone wants the same things that he/she does.

It can be very difficult for a young Autistic to understand that other people don’t want what they want… that they could possibly not pick Luigi when they picked Mario… they’re a perfect match, a team! It took Cameron a little while but then he learned and now understands that other children need to make their own choices.

Turn Taking
Once you’re playing, you’re forced into turn taking. There’s no grabbing at dice to take another turn.. the controls are given to the next player.. it’s set, no questioning it. You wait until your controller makes a noise and it’s your turn again.

Team Work
There are a huge number of mini games and each tests different skills. On top of this, it promotes team work as some games will be 4 on 4, but then some will also be 3 against 1 or 2 against 2. This means that you have to learn to work on your own, to work against everyone or be on a team with another person and work together.

Communication
Cameron can communicate most easily when he’s talking about something he loves and Mario is definitely one of those things. When he has a friend to play with, it’s easy for him to talk to him because he can show them what to do, teach them new things and get excited about game events as they happen together.

Level of Difficulty – Anyone Can Win
The game allows for people of different skill levels to play and everyone will have a chance to win. My wife and I can play with him and no matter how well we do, or he does, anyone could win. This means that your child has a chance at being super proud of beating his parents but it also means that they don’t have to take is so hard if beaten either because everyone gets a chance to win.

Fine Motor Skills
Not only does the game help in social aspects, it is also great for fine motor skills and even gross motor skills all thanks to the Nintendo Wii technology. With so many mini games, your child will have to punch, roll, turn, balance, point at the screen and more in order to do well. It runs the whole gambit of the controller’s capabilities.

Most children like video games and we all know that they do have their benefits in developing problem solving skills and motor skills but for us parents of Autistic children, it can be a whole other world of meltdowns and so we just avoid letting them play all together.

Mario Party 8 is a great solution as it offers more benefits than any other game we’ve tried or heard of thus far. Cameron has really excelled in so many facets of his life and is in large part due to this game. He takes turns with other children so much better now when playing regular board games, he lets his friends decide things for themselves now, he is just doing great.

As always, I don’t promise that your child will have the same reactions or benefits as mine since all children are different (especially with Autism) but if you’re tired of the meltdowns that come with turning the game off, Mario Party 8 may be a good game to try.

My only tip/suggestion that I must insist on you, play with your child! It’s a fun board/video game so don’t fear it, don’t just dismiss it because you don’t play video games… get involved, take the plunge. Playing with your child is not only beneficial but it’s also just about the best thing you can do as a parent. Be involved.

Comments { 21 }

Family Dinner is Not What I Thought It Would Be

By on June 30, 2010 in Autism

When you have a baby, and you’re standing there with this little new life of just a few minutes… your life flashes before your eyes, only it’s not the life you’ve had but the life you have yet to have.

You picture teaching this new life how to walk, how to say it’s first word, how to throw a ball, ride a bike… eventually, how to drive. So much floods your mind that you literally get light headed thinking about it. And as the years start rolling and you start doing some of those things, your mind starts to picture the more simple things as well, such as bed time stories, visits to the park, school and family dinners where everyone talks to each other.

But then you find out that your child has Autism (or any disorder/disease really) and all of those happy thoughts of your life yet to be come flooding through you once again, only this time it’s not of how you look forward to them… but… will they happen at all?

We bought my son a bike, and I made a solid attempt at teaching him to ride it but he could never get his feet to do what was needed of them. And if you’ve ever seen a 4 year old with Autism try to run, you would see why. So I’ve put it off for another year, we can try again as he learns more control.

I tried to teach him how to catch a ball but again,  his hands simply don’t have the discipline and coordination to do the things that are required of them.

Family dinner is one area that has been particularly difficult… and it’s not because he won’t talk to us, as you might expect from a child with Autism.

While it’s true that Cameron has a hard time with the social aspect, it’s not that he can’t talk to us… he does, it’s just that he can’t sit there for a whole meal. Essentially what happens is that myself, my wife and my 2 year old all sit around and eat while Cameron runs in and takes a bite and then runs back out to the play room to play. We give him a bit and then call him back to have another bite and he disappears again.

This has been the routine ever since he’s been able to do so… it means having a dinner with and without the whole family. It’s not what I had pictured at all, but I’ll take what I can get.

The other issue is that he’s on a GFCF diet, which means that 9 times out of 10, he’s eating a specially prepared meal that doesn’t match ours… we do try to stick to the same diet however my son’s food issues extend beyond just what we limit him on. He also refuses to eat the majority of vegetables and all meats, including fish and chicken. He has never once tried fast food and refuses to, but he does love candy and chocolate, not the best supper options.

So there we sit, watching my son run in and out through the entire meal, eating something different from the rest of us. Not at all what I had pictured when I first held him in my arms, not at all the happy family setting you see in movies and television.

We often get funny looks or comments from friends and family when they see us let him run around and play, rather than sit up like a good big boy and eat until his plate is empty (right? you all remember your parents making you do that?)… well, the fact is, either we do it this way or he doesn’t eat his dinner.

I’d much rather have a child with a severely limited diet actually eat, even if it means he plays all the while, than to have him not eat at all.

It’s not what I pictured, it’s not what you see on tv and it’s not how people tell you it should be… but it’s my family, he’s my son and he’s happy and healthy so to me, it’s the perfect family dinner.

Comments { 1 }