Tag Archives | Autism

He’s my son

By on November 29, 2010 in Autism

One of my two year old twins, Logan, has autism, SPD, very significant food allergies, and seizures. The twin brother, Colton, does not. It has been interesting to me, in the nine months since Logan’s diagnosis, the various things people have said in response to that. A neighbor come into my home once and told me, “Oh, what a shame that Logan is that way. But what a comfort it must be that you were able to have one twin that’s not got problems. At least you have Colton and the other kids.” At the time, I was so angry, I invited this neighbor to leave and never come back. But that incident provoked a whole thought process in my brain which turned out to be a good thing!

Yes, Logan has autism. Logan has sensory issues. Logan has food allergies that are so significant that they can ( and have) cause anaphylactic shock. He is the only two year old I know that has a twinject prescription that has unlimited refills. But even with all that, more importantly, he is my son.

I do not love Logan any less than I love Colton or my five other children simply because he has autism and other issues. I do not love Colton more because he does NOT have learning delays, or allergies. While I do have to do things differently for Logan because of his special needs, it does not change the fact that he’s my son.

When I write about Logan on our blog, or introduce him to someone, I do not say, “ This is Logan, he has autism.”. I say, “This is my son, Logan.” You see, that thought process which my neighbor provoked, inspired me to search within myself and come to some carved in stone realizations.

Autism does not define my son. Autism is not the sum of his existence. What autism has done for our family, however, is taught us to sit back and enjoy the little things. Milestones that my other children hurdled as a matter of course, are now something we celebrate. Not because Logan has autism, but because Logan has mastered something new after days, weeks, sometimes months of practice and struggle, without every giving up. We have learned that a victory is a victory, no matter where you are in life.
Logan is not “that way”. Logan is Logan, and that’s all he will ever be. Just as I am me, and you are you. It’s as simple as that. Yes, Logan has therapy to help him. So what? I have spell check to help me, because I have fingers that like to type before I finish a thought. Both therapy and spell check are tools. Everyone has different ones, for different reasons, and it makes you no less of a person, by using them.
Loving your child is all encompassing. Whether the child walks or talks or grows up to be President of the United States, he/she will ALWAYS be your child, and you will always be your child’s parent.

Now, when someone “consoles” me because I have Logan, I simply say, “Why are you consoling me? Logan is a gift. He’s my son.”

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Hugs and Kisses in patterns

By on November 25, 2010 in Autism

When Cameron was a baby, he loved being swaddled and insisted on snuggle time for a good 15 to 20 minutes every time he woke up, whether it was in the morning or after a nap. It was that way for the entire first year but eventually he grew out of that and instead had a need to be off on his own doing something.

For most of his life, we rarely ever got a hug out of him and certainly never got any kisses, unless he’d let us kiss his forehead or something. It was just something we had become accustomed to as have many parents that have children with Autism.

A couple of months ago, something was different in Cameron. He woke up one day and suddenly he was hugging us all the time. Believe me, we never denied him… it was great!

Recently though, in the last 2 weeks or so, he’s cut back on the hugs once again. He only really gives us hugs before bed except he’s added two bonuses along with the hugs. One is that he also gives us kisses on the cheek and the other is that he does the hugs and kisses in patterns.

It’s never the same pattern from night to night but it is always the same pattern between my wife and I.

What he’ll do is run over and speak out his actions as he does them, for example “I give you a hug, and a kiss and then a hug and a hug and then a kiss and a kiss and then a hug and then a kiss and a kiss and a kiss.”

Once he’s done his pattern, he goes to the other parent and repeats the pattern.

Now, I’m not sure if this is his Autism showing or if he’s just a 5 year old that’s fascinated with patterns, since he’s been learning them in school… but it really is quite cute. And it results in us getting hugs and kisses (on the cheek anyway), so we aren’t about to discourage him from doing it.

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My son likes the good guys, but he just loves Rudolph and Dumbo

By on November 22, 2010 in Autism

If you ask my son what his favourite characters are, he’d likely tell you about Mario, Woody, Buzz Lightyear and maybe even Mickey Mouse. Those are the ones he watches most often and really likes to pretend to be because they have bad guys to beat. They have someone to who’s always trying to stop them and no matter what, they have to be better than the bad guys.

Dumbo and Rudolph

Dumbo and Rudolph

Still, you’ll never see him sit with such a wide eye smile and sense of pride as when he watches movies like Rudolph the Red Nosed Reindeer or Dumbo (the flying elephant).

You see, my son is 5 years old and even though he has Autism, he doesn’t really think of himself as different, like Rudolph or Dumbo would. He goes to a special school that has normal kids on the main floor and children with Autism on the bottom floor. He has other children with Autism around him, he has teachers and helpers with him the entire time and he has never even experienced bullying or teasing.

To him, he’s just another average boy doing average things and well, pretending to be Buzz Lightyear fighting off the evil Zurg (usually played by his little brother).

I tell you this because I often try to rationalize, to myself, why it would be that he’d identify with Rudolph and Dumbo so much. Don’t get me wrong, he doesn’t talk about them too much after the initial hour or two immediately following the movie but just the way he talks about them, the look he has… the way he remembered the details after the very first time he saw them… this was so different than most movie’s he’s watched.

So if it’s not that he feels different and can relate to them, then what is it?

Well, maybe he just sees it in me… I don’t have a mirror but I’m willing to bet that I exude some sense of pride in my own inner need to relate them. To think of my son as the one that could save Christmas or become the star of the circus if he just believes in himself. Maybe he feeds off my energy.

Perhaps it’s just that he likes those types of stories, he wouldn’t be the first. I mean, they are classics for a reason. It’s certainly not unheard of that a child, or even an adult, would like the underdog stories for the sake of how good you feel at the end, when it turns out that they’re not just different, they’re special.

Or, as has been proven to me time and time again, maybe he realizes far more than I suspect he does. Maybe he does recognize his differences from his many family gatherings, trips to see other children and so forth. Maybe he realizes that when we tell him that some foods will “bo bo his tummy”, that he is likely one of very very few, maybe even the only (in his mind) person who can’t eat those things.

I don’t want to get into the topic of when to tell your child they are different or that they have Autism, that’s for another post as I’m not yet at that stage but, I do still wonder just how much he really knows.

I never dismiss anything because I never underestimate him. He’s my Rudolph. He’s my Dumbo. No matter what anyone thinks, I believe that he can accomplish anything that anyone else can and more… I’ll never stop believing it.

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Deconstructing stereotypes

By on November 20, 2010 in Autism

Whether it was the first day of class, first day at a new job, or for any other of the multitude of appointments I’ve had so far in my life, I have always been asked some variation of the following question regarding my last name (Tecpanecatl): “What is that?” My personal favorites were the few times someone looked at me with raised eyebrows and came right out with “What are you?” I don’t believe they intended to be derogatory but that particular question did not deserve a response. Since the name is unnatural to them, they could not help but feed their curiosity with what appeared to be an innocent question. Confused by something new and because they had no point of reference in their mind, they looked for information in order to place me in a cultural or ethnic group familiar to them. Just about everyone feels comfortable when they are able to place people and actions in separate and distinct categories. We have been taught that our actions should meet certain expectations and behavior is strictly monitored from birth. This has created and maintained stereotypes that ostracize anyone that doesn’t fit neatly into any specific category. This pattern of thinking bothers me and I feel it is an obstacle that all autism parents and advocates face on a daily basis.

My oldest son is an adorable and loving 4 year old with autism whose behavior would be considered quirky by those unfamiliar with developmental disabilities. If my name is enough to temporarily throw someone off than I imagine an encounter with my son would turn their world upside down. Telling someone he has autism does not sufficiently explain his behavior. When we are out in public I can see the questions in their stares as my son has a meltdown or starts talking to himself with a type of speech that is not understandable to them. They seem to be thinking to themselves “What is that? What’s wrong with him?” I see their responses and have come to realize that just because more people have heard of autism does not mean they care enough to learn about how it affects a person’s life. Just because my son may not do things the same as other kids does not mean you have the right to judge him or his parents. If people took the time to learn anything about autism and developmental disabilities they would understand why my son may not answer your question (his limited speech prevents any type of conversation), why he refuses to eat certain foods, why he is unable to tolerate haircuts or doctor visits and why he obsessively repeats phrases he hears on TV. These are only a few examples of how someone may label him ‘odd’ without really knowing anything about him. I encourage everyone to spend some time researching autism and its effect on the individual’s development. I read and write about autism because it directly affects my life and also with the hope that we can begin to deconstruct stereotypes that are harmful to those labeled as different. The next time you or someone you encounter falls back on an old stereotype, think about who benefits from that train of thought and most importantly who it is hurting.

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Blogging about our children, use their real names or a pseudonym for privacy?

By on November 17, 2010 in Autism

First off, this is something that has actually be on my mind for a while but it wasn’t until a well thought out post on another blog generated a lot of discussion, including one attack, that I really felt compelled to speak up about this.

Read the blog post here: http://bigdaddyautism.com/?p=1207

PrivacyI am very honest and very sincere in everything I do, especially when it involves a topic as important as Autism. This blog not only has my real name, but it’s the title… it’s even the URL address!

The question is whether or not my son would approve of me using his real name later in life… will he be embarrassed by it? Will others use this as a way of teasing or mocking him?

Autism Advocacy

I write about Autism. This is a personal blog but it’s not my personal blog about our vacations, times we’re sick, going to visit family, etc… it’s not a diary. It’s a blog advocating Autism, or more specifically, mine and my son’s stories and experiences.

As such, I write so that others that read will know that they’re not alone… maybe they’ll even feel inspired, motivated, educated… maybe they will be able to relate to the things I say.

This means that I have a lot more readers that I don’t know than I do readers that I do know. These people will likely never meet me nor my son face to face. But those that do know me will know a lot more about myself and my son than they did previously. But this is a global topic, Autism is simply so much bigger than just me or my son.

Honesty and Trust

A great writer can capture your hearts and your trust by the words they say. Sadly, most of us are not great writers. We’re people, we’re parents… and we’re simply trying to be involved in the community by sharing what we can. Therefore, making you cry, making you trust us, making you believe the words we say are the honest to goodness truth can be quite a daunting task.

I believe that being upfront and honest with my name adds to a reader’s faith in me. That I have nothing to hide nor anything to be ashamed of.

I recently read a new spinoff Superman comic, Earth One. In it, Superman talks to his mother about the costume she made… and asks why there is no mask. Her reply to him is that, with his power, people will fear him. They need to be able to see his face, to see his innocence and honesty so that they can know they can trust him. A mask would only make people fear him more, make them question him, make them not trust him.

I do like to think of my son as a little Superman, but I realize that it’s not great power that he has. It’s a disorder. Even still, his message is a very powerful one and a mask would always get in the way of that message… it would always leave a little doubt.

Shame and Embarrassment

Let’s be honest, you could be the best words-smith on the planet and paint your child in the brightest most noble light and other kids would still try to use it against them in the schoolyard. Teasing and mocking comes from the strangest places sometimes.

If you would like to protect your child from that sort of thing then using a pseudonym is definitely a good way to go. However, don’t think that those children won’t find some other way to tease your children.

I think of it as the old pillow armour, you try to put up all this padding around your child to make sure that no one can ever do them any harm and not only do they still get teased, but they’re teasing them about your pillow armour!

Whether you use a pseudonym or not, if you write from the heart and you write with honesty and good intentions, there is nothing to be ashamed or embarrassed about.

One of the most important lessons in life for every child is to drown out or ignore those that try to mock your integrity. Shielding your child away from having to face that will not help them learn that lesson. They’ll likely have to learn it eventually anyway, so what does it matter if it’s your blog that becomes the trigger?

I can tell you one thing, if one blog post of mine positively affects one other human being, I will never ever have any regrets for posting it, no matter what names or contents I had put into it. I would hope that, later in life, my son agrees with that. If I use his name and someone else’s life is better for it, he should be proud, not embarrassed.

Levels of Privacy

The average person fears the internet a great deal and has every right to do so. There is a lot to fear because really, the world is out there… the best of it and the worst of it. I still know many people who absolutely refuse to use their credit card online yet use it often over the phone. The internet has multiple levels of encryption and security, a phone has none. Hmm…

Unfortunately for all those average people, there are a lot of above average skilled people on the Internet that could find your real name with a little digging in the right places. So the only people you’re really protecting yourself from are the other average people.

If you do take all the precautions necessary and never once enter your name into a computer, then maybe… but only maybe. Because there are still ways to track your accounts back to you.

I don’t mean this as a way to scare you, quite the contrary. You’ve been online all this time and you’re fine, right? I’m still here and I’ve been online for far too long! The thing is, you can be very very very private or only a little bit private. You’ll likely never be completely private unless you really know what you’re doing.

Conversely, think of all those people who offer their children up for the brochure photos, billboards… commercials even! Those people are all still doing alright. I don’t think they’ve had to endure any more school yard bullying than anyone else.

I’m going to guess that you haven’t taken it to that extent but think about those people that have. Their children are REALLY out there. And they’re probably extremely proud to be making a difference. To be the kind, warm and trusting faces that you and I need to see in those commercials.

So Many Reasons

There are so many reasons for wanting or even needing privacy. I can’t even begin to go through them all but sometimes there are legal issues, or a disagreeing husband or wife, perhaps you’re writing about things that are much more personal than just specific Autism related stories… the list is endless.

Then again, perhaps you really are using a pseudonym simply because you don’t want to use anyone’s name without their informed consent, even your own child’s.

Everything I have written in this blog post is my own personal opinion and my own personal reason for making the decisions I’ve made. I understand completely why and how people make their own choices.

I would never, for a second, doubt that someone is very proud of their child even though they hide them behind a fake name. You don’t have to reveal an identity to reveal your pride. You also don’t have to tell us your name for us to believe you or to learn from you.

This is Who I Am

My wife is a very private person, even after joining a forum where all people see is a user name, she still never really opened up to anyone for almost a year and a half. Suffice to say, she was skeptical when I started this blog.

However, she very quickly saw the need to share who I really am and to share my son with the world. I guess I should say, my need.

When you read my blog posts, I don’t write like a doctor, I don’t write like a writer… I write like me. And to use another name is to write like someone else. To pretend to be someone I’m not.

This is who I am, a very proud father. My son is absolutely amazing and I know that so long as I believe that through and through, and so long as I write with honesty and sincerity, those who read it will think that my son is amazing as well.

I can’t even imagine writing something that would embarrass him or make him feel any shame because I can’t think of anything that would qualify. He’s an inspiration to me and hopefully, through him, I can be an inspiration to others.

My Son, Cameron.

Cameron is his name, it is the name I gave him and the name I will never be afraid to share with the world. I do not know what the future holds in store for him but I like to think that what I do now, with this blog or otherwise, that he can be proud of me.

I also hope for a future where, despite still having Autism, he continues to speak out and inspire people with me. That he has a ‘normal’ and fulfilling life but is able to continue raising awareness, continue getting involved with the Autism community.

It’s not a guarantee though. I would never force him into anything in his life. If he isn’t comfortable with that or has no such desires, that’s fine too. I will be no less proud of him, he will be no less of an inspiration to me.

I will, however, make sure that he knows that what I do, what I say, is bigger than just him. That I would do anything for him, that I do everything for him, but also that there are so many out there that need an encouraging word, a little advice.

Conclusion

I’m getting off topic here but the point is, you reading this, is very important to me. I owe you the truth. And the response that I’ve received from readers like you has been astounding.

I honestly believe that the wonderful feedback and support I’ve received through blog would not be anywhere near the same level if I couldn’t be completely upfront and honest with you.

That’s not to say that you or anyone else couldn’t use a fake name and get the same response. It’s just how it is for me. It’s how it always has been for me and always will be.

What’s truly important is that no matter what name you have, no matter what name you use, be honest and sincere. If you speak the truth and you keep the bigger picture in mind, there can be no shame in the future.

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