Tag Archives | school

Find another way

By on October 17, 2012 in Autism

Cameron has started this year in a new, more academic class than last year. Up until now, he’s been learning a lot but the primary focus as been on building upon the things that he’s been struggling with. Things like his fine motor skills and socializing.

This year, he’s doing math and spelling tests. He’s also learning about mammals, reptiles and amphibians. It’s exciting stuff! And he’s loving every minute of it!

Well, almost every minute.

While working with him at home, I have him write out his spelling words for two reasons… one is so that he can learn them and do well on his spelling test but also, so that he can practice his penmanship.

My wife, Natalie, brought up an interesting point though, one that we’ve now mentioned to the school.

Cameron has a terrible time with his writing. He doesn’t like writing and he knows he’s not good at it. And it weighs on his mind.

spelling test

Missed the “r” in morning

Looking back at some of his spelling tests, the words that he got wrong or the mistakes he made were words and mistakes that he shouldn’t have gotten wrong.

For example, in almost all of his spelling mistakes, it’s due to him missing a letter. Not getting a letter wrong or mixing them up, he is leaving out entire letters.

Natalie is the one that realized that, he’s not getting the words wrong because he doesn’t know how to spell them (or sound them out), it’s because his mind isn’t on the word… it’s on his writing.

He knows that his writing doesn’t look good and he knows that he has to fit the answers in a little space on the page. So he puts in extra effort to be sure that the teacher can read it and that it looks ok… because, you know… you don’t want anyone to laugh at your writing. Yes, he worries about that.

So I brought it up with the principle yesterday and if all goes well, hopefully testing can be done, or at least made available, electronically. So that if a student prefers, they can type their answers, either at a computer or some device with a touch screen.

And we’re lucky. We’re so very lucky that this school is so understanding. As I brought it up, I could see the principle understanding exactly what I meant. When I said “when a child with autism starts to get flustered… ” he finished my sentence with “their whole day could be shot after that.”

Yes!!

Do I want them to stop working on his writing and fine motor skills? No, of course not!!

But I don’t want those challenges to get in the way of other things either. He knows those words. He knows the answers to the tests. And his anxiety over his writing skills should not be getting in the way of that.

The reason that I’m writing about this, is not just to illustrate what’s happening in Cameron’s life at the moment (although there is that too), it’s to provide an example where sometimes you have to be involved, be aware and when possible, find another way.

Parents, you need to recognize these things in your children. Perhaps they are being held back by something that no one else would ever be able to recognize. Perhaps there is some other way that may work well for your child. And most importantly, you have to try to provide some solutions.

Granted, as I said, we’re lucky. My son’s school is awesome. And not everyone has a school like his. Not all schools can or are able to accommodate a change like that.

But that doesn’t mean that you shouldn’t try.

If something isn’t working, or could be working better, you have to try to find another way.

Nothing can stop you, so long as you never stop trying to find another way.

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Visiting family – One year later

By on May 29, 2012 in Autism

We made the decision to move pretty far away from my family before Cameron was old enough to start school, in an effort to get him into a school that would suit his needs rather than force him to conform to the needs of a school around here.

It was a big move as it meant separating my children, and myself, from my family. It’s an 8 hour drive so it’s not so far that we never see them but it’s far enough. Plus with extreme weather conditions where we moved, we basically only get to see my family once a year.

A year isn’t really much to me or my aunts, uncles or my mom… because we’re all adults. But to a child that is only 6, or 4, as is the case with Cameron’s little brother Tyler, a year can make a huge difference.

There’s extra inches, there’s maturity in their face, a wider vocabulary, a better sense of humour and in the case of a child with autism, like Cameron, there’s progress.

Yes, Cameron is taller and smarter now but it’s the fact that he’s willing to actually talk to people that really shocked my family. Not just talk but have real conversations.

That’s thanks to the hard work of his great teachers at the school, his therapist, our own hard work at home and of course, Cameron’s very hard work to be willing to put in the effort to try. If he didn’t want to, and I’m sure a big part of him did, he could have just shy’d away and refused to talk to them. But he didn’t, at least, most of the time anyway.

More so than that was his need to get changed in the bathrooms, not wanting anyone to see him naked. At 6, this probably should have happened earlier but as a child with autism that is not overly fond of wearing clothes as it is… it’s really a very big deal.

It’s very gratifying, as selfish as that is, because it justifies, at least to me, our decision to take our family so far away. And my family sees that and understands our decision. They understand why it is that they now only see us all once a year. I mean, they understood the decision when we made it but now we have results.

And I’m proud too. Not of my decision or of myself but I’m proud of my son. I’m proud of Cameron for making that effort to talk to people and even play with them sometimes. To get off the couch and go outside to play with the other kids a couple of times.

I’m proud of him for making so much great progress so that when we do see my family, he can impress and even amaze them.

Not every parent is able to pick up and move and certainly, not every parent sees these kinds of results from year to year… so I’m so much more grateful than any words I write here could convey.

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When the care givers are the ones bullying our children

By on May 4, 2012 in Autism

I would like to start this post stating that there’s a growing trend but it’s much likely that this is a much longer lasting trend than most of us think it is… it’s just that we’re becoming increasingly aware of it. Thanks to better recording devices and such, people are getting caught. And thank God for that.

What I’m talking about is when we trust other people to care for our children… to make them feel safe, secure and comfortable…. and those people betray that trust and become the bullies that we were hoping our children would be protected from.

Bullying and Autism

To anyone with autism or that has a child with autism, it’s never been a secret that autistics get bullied more than most other children. Recently, some researchers crunched some numbers and confirmed what we’ve always known.

The shocking part is when we discover that it’s not just the other children doing the bullying.

Grown ups… adults… trained people that are being paid… paid with your tax dollars… adults that supposedly became the person they are today because they loved working with children…. adults… the ones that look you in the eye and tell you that they will take great care of your child…

They’re not adults… they’re monsters.

bully teacherUnder the bed or in the closet, not at school

Children are supposed to be afraid to look where they think monsters might be. They’re not supposed to be afraid to go to where they know a monster actually is.

You see, children don’t see other children bullies as monsters… they see them as meanies or bullies. They’re just kids. They’re just mean. And it hurts and it really sucks. No one likes to be victimized by their peers.

But it’s a whole other level of victimization when it comes from a person of authority… a grown up that is supposed to be keeping them safe. They’re not just mean, they’re not just a bully. They’re the real monsters.

Most kids move on from school and put the bullying behind them. It still hurts to remember but it’s behind them.

But it’s so very much harder to do that when it’s the teachers that did it. That kind of thing scars you for life. You never let that go.

The worst part is… these adults know that. They’re in that position, so they know. They took the courses, they’ve dealt with children long enough… they’re not unaware of the effect they’re having. They’re not oblivious to how smart kids really are, just how much they take in.

People that create bold face lies to parents, that verbally or physically assault a child… they are criminals.

That’s not even the worst part

What really gets me sick is how much the education system is quickly becoming just like the political or religious systems. When these things happen, neither the police nor the media, and certainly not the parents, can get any information out of the school. It becomes an “internal matter” and they just quietly go about their business, giving no information to anyone.

Later you find out that the person that abused the child was simply reassigned, or given leave with pay or… if they are fired.. they’re fired with a nice severance and likely rehired elsewhere to care (or not as the case may be) for other children.

But wait, I’m getting ahead of myself… there’s a reason that much of this goes unchecked in the first place.

See, children are very unlikely to ever say anything. I mean, think about it… you’re a little one at school, who believes completely that the grown up that is in charge is actually allowed to do everything they do… and worse, if you do say anything… they could do much worse than they already have.

How do you speak up to that?

It gets even worse if your child has autism because then there’s next to zero chance that they will tell anyone.

See, in the mind of some people, that makes it “the perfect crime”… they can do and say anything they want because they’ll never get caught.

They also don’t much care what effect it will have, if any, on the child for the rest of their lives. Because they are likely not thinking about anyone but themselves.. they certainly aren’t thinking of the child’s future.

But they know. They know full well what effect it will have. They’re just not thinking about it.

This is what makes them a monster. This is what makes this truly despicable. This is what makes them less than human.

And they’ll do it again… where ever they get reassigned to or rehired with… because it’s an internal matter that the school will handle. Right?

Disgusting is what it is.

Now that you’ve read all of this, I’d like to show you the latest two cases in the news… which are what prompted this post…

First is Stuart Chaifetz’s video where he reveals what he had recorded one day when he was forced to put a recording device on his child. His child was acting quite contrary to his personality and he was getting no answers, so he did what he had to do to find out the truth.

Second is another story is taken from video cameras on board a school bus where aides were supposed to be helping a child put on his safety harness but instead, began smacking him on the head.

http://www.carolinalive.com/news/story.aspx?id=748629#.T6B_EfXUkjs

I am quite happy to report that on this latest story, the aides have been let go, without pay and will be on trial to answer for these crimes.

So what do we do?

Well, many parents refuse to take the risk and choose to home school their children…  and I can’t blame them. If it did happen to their children, they’d likely never know, or at least not for a long time… too long. There really is no way to be sure before hand. It could happen to anyone anywhere and finding out after the fact means the damage has already been done.

Still though, much like plane crashes… even though they do happen, when you take into account how many planes are travelling at any given time… the crashes happen so rarely that airplane travel is still the safest way to travel.

The same can be said for child care, teachers and teachers aides… yes, this disgusting behavior is happening out there… and we’re finding out about it more and more… but it’s still rare.

Still though, even if it’s only happening with 1 in 5,000,000 teachers/aides/care providers…. is it worth that risk?

Is better screening the answer? Well, I don’t know since I’d wager that these people probably really were happy to work with children in the beginning. Years can change a person. So maybe they’d be the best of candidates one year… while not the best choice the next.

Better monitoring systems? That’s probably what I would suggest most but doing so is very costly and takes away from the money available to be doing the actual learning and caring for the children. Still though, it does seem to be becoming more and more of a necessity.

Is home schooling the answer? Well, home schooling does have it’s pros and cons, but if you’re keeping your child home because of the risk of a bad teacher… where does it end? Keep them off the sidewalks for the risk of bad drives? Keep them out of planes for fear of crashes or terrorists? Keep them out of corner stores and banks for fear of robberies?

Sheltering is an option so long as it’s not taken too far, I guess.

I don’t know what the answer is.

All I do know is that by law of averages, the more teachers/aides/care givers there are… the more likely there is to be a bad egg in the bunch. And those laws of averages get heavily swayed when a lack of funding is involved in the equation.

The average is again greatly swayed when there are more and more children that need those teachers/aides/care givers.

The numbers keep going up, the demand keeps going up, the quality…. well, there’s only so many great teachers out there.

Think of it this way… if you can have 20 teachers in the country, you’ll pick the 20 best.

But if you have to have 10,000,000 teachers…. then you’ll have to pick the 10,000,000 best. And the 9,999,999th best teacher is… well, not the best.

So what do we do? Population control isout of the question, not to mention a bit late if it ever was…

I just don’t know. How do we stop this from happening? How to we keep our children safe from the people that are supposed to be keeping our children safe?

The only thing I know for sure is that there needs to be more accountability. Like those aides on the bus facing trial and not getting paid right now… we need more of that.

No more sheltering or handling things internally or shuffling the deck…. people need to be held accountable. A criminal is a criminal whether they are a politician, religious leader or a part of the education system.

Enough of this.

No more “system” except the justice system.

It’s the only one that matters.

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The winner for the Determination award goes to…

By on April 20, 2012 in Autism

Cameron Determination

Cameron!

Every month, as part of an effort to raise (or keep up) school spirits, the teachers pick a student from each class/grade who demonstrates the most of that month’s selected character trait to win an award.

Sometimes it’s responsibility, leadership… it’s different each month. This month, it’s determination.

And Cameron deserves this one.

From early on, knowing full well that Cameron’s struggles will likely be much greater than the average person’s, I wanted to instill in him some confidence that would still be there later in life because it’s always been a part of him.

So right from the time when he was capable of answering, I’d ask him “Cameron, what do you do when you fall down?” and he’d answer “You get back up.”

That was when he was 3. That’s still his answer today. He’s almost 7.

The reason that I picked this one thing, this one characteristic for him to hold above all else is that, through determination, he can over come any odds to achieve any other characteristic he may need.

If he wishes to be responsible, his determination can help him achieve that. If he wishes to be a great leader, his determination can help him achieve that.

Determination is the key to not just overcoming his own weaknesses and struggles but it’s also the key to achieving more than those around him.

He’ll be in a world with people that do not have autism nor any other disability and while they may accept him and may work with him… it’s his determination that will allow him to progress beyond that… beyond them… to strive harder than they ever will and to surpass them.

It doesn’t matter what he decides to do with his life… so long as he believes in himself and stays determined… he can do anything.

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When one child’s autism influences another child’s autism

By on March 28, 2012 in Autism

For the most part, ABA therapy and other such systems separate the child from the world for some one on one coaching… one therapist, one child.

In many ways, this is not a very good practice when the child is having difficulty coping with social situations and they’re essentially removed from any and all social situations. It’s like trying to help a child play the piano without giving them a piano.

Still though, at the same time… there is some benefit to this. We all know how kids are, with or without autism… the phrase “monkey see, monkey do” comes to mind. Children (and certainly most adults too) are heavily influenced by their peers. When they see someone behave a certain way in a certain situation, they believe that it’s just how it is supposed to be and so they behave the same.

influenceSchool

My child is in a special school with classes dedicated to autistic children. There are now 5 classes, most around the 5-6 kids size. Which again, like ABA, has some great benefits which I love but then it also has a few problems.

Now, to be clear, these are essentially the same problems that are found in every classroom, it’s just that these can be amplified when autism is involved.

When you put 5 or 6 children together in a classroom, you find that the children will range in behaviors quite radically. Some children are completely obsessive/compulsive in certain objects or mannerisms while others seem to be all over the place. Some children are quite vocal (you know, the never stop talking kind) while others struggle to string words together at all.

In these types of situations, as you can imagine, the “monkey see, monkey do” world of peer influence can be both encouraging and discouraging.

What you find is that some parents love such a positive place where their struggling children can learn the better behaviors of his/her peers while other parents fear that their children will pick up the unwanted/not desired behaviors of some of the other children.

Friends

That’s just school… the same holds true with friends. And this is where things can get… uhmm… sticky?

As a parent of a child with special needs, we all wish for nothing more than for other parents and their children to look passed those needs and just be friends for the sake of being friends. Have play dates, birthday parties… have fun together.

You have to understand that their child, whether they have autism or not, may pick up some behaviors that may be unwanted in their house. That quirky, “it’s just an autism thing”, behavior that you tell your friend that you get used to… might not be something that they want to get used to. And they’ll be sitting there hoping upon hope that their child doesn’t pick it up from yours. They’re not afraid of autism being contagious or anything… it’s just that they know that kids will be kids.

This divide (if you can call it that) even exists in the autism community, I have found. Let’s say that you have a child that is integrating well, learning and desiring to be social and their future looks promising… and then a fellow parent in the community invites you and your child over for a play date or birthday party or something because they don’t have a lot of options, they don’t have a lot of friends and they’re hoping you and your child will be there, because you’re both in the autism community… but their child isn’t coping so well. They are easily angered, aggressive, have mannerisms or behaviors that you hope your child does not pick up…  suddenly, you’re “the other parent” that I had just described in the previous paragraph.

You’re both in the autism community so you should be far more understanding and willing to go ahead and do it but at the same time, because your child does have autism, you know they’re far more likely to pick up those behaviors and mannerisms than a child without autism would.

You find yourself understanding why other parents whose children don’t have autism are reluctant to allow their kids to play with yours… because you find yourself being in the exact same situation.

Suddenly ABA isn’t looking so bad huh?

Peers

We can’t shelter ourselves from our peers anymore than we can shelter our children from theirs. Ultimately, bad behaviors are out there and we’ve picked up some from others and our kids will most definitely pick some up from other kids.

It sure is hard though… seeing your child do something at home that you don’t like when you saw some other kid do earlier.

Autism makes it especially hard… when you see your child being that “bad influence” for others and at the same time being very likely to pick up those bad behaviors from other “bad influences”.

I use quotes because most kids aren’t bad influences. They just have some behaviors that you do not desire for your own kids to have.

Ultimately it’s up to each of us to decide what is best for our children, what will and won’t be a good influence on them. But it sure is easier to ask other people to be understanding of our unwanted behaviors than it is for us to be understanding of theirs.

Be careful what you wish for

It’s funny, those of us who have children that don’t speak for a long time… we wish and wish and wish for them to find their voice. Then they do. Then a few years later we’re telling them to stop talking all the way through a movie, or to stop talking and eat or… just to stop for a minute!

Being social is the same, in a way. Autism is classified in the way it makes being social so difficult.. and so we wish and wish and wish that our children can be more social and go to play dates and birthday parties… and then when it happens, we fear the influence!

How can we wish for something so bad… and then not want it again so quickly? Is that what we wished for? Were we unaware of the issues that would come with our wish or were we more than willing to accept those issues if only our wishes could be answered?

Because it seems to me that it’s easy to forget about not caring about the issues when the issues would be a welcome problem to have… that doesn’t diminish the problem though.

We still want our kids to stop talking all the way through dinner or the movie we’re watching. And we still want our children to be around positive influences more than negative ones.

But at the same time, we can’t forget the alternative… we can’t forget all of those out there who still haven’t gotten their wish.

So many people would love to have their children ruin their movie by talking through it… because it would mean that they’re talking. So many people would love to have to worry about what bad behaviors they might pick up from other kids at a birthday party…  because it would mean they’d be at a birthday party!

When something seems like a problem… don’t think “be careful what you wish for” and don’t think “monkey see, monkey do”….  instead, think of another old cliche….  take nothing for granted.

So I think, and this is just my opinion, that sometimes a problem is a good problem to have. Because not having that problem can be so much worse. So keep the big picture in mind when you make these decisions… as I said, it doesn’t diminish the issue but perhaps it will give you a new perspective.

Besides, despite this whole article… not all influences are bad influences. There could be some good things picked up along the way!

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