Tag Archives | support

To the autism moms for Mother’s Day 2014

By on May 11, 2014 in Autism

When the “experts” say “some children just talk later than others”, you are the one that insists there’s more and gets it right.

When other people see something “strange” in your child, you see something special.

When the “know it all” posse questions your every decision, you stand strong.

When your child falls down, you teach them how to get back up.

When your child struggles to learn, you find new ways to teach.

When others call it a temper tantrum, you know your child is actually in pain.

When others say your child needs a firm hand, you offer a calm voice.

When bullies try to knock your child down, you are the one to lift them up.

When depression tries to steal your child’s self esteem, you reinforce it.

When the school tries to force your child into a standard mold, you shatter that mold.

When your child’s heart is broken, you are the glue that puts it back together.

When your child moves out to be on their own, you are the one that prepares them.

When your child has a set back, you get behind them and push them forward.

When your child needs you, you drop everything to be there.

When others see the rain, you see the rainbow.

To the single fathers, the legal guardians, the kind souls that see all children equally and of course, to the mothers… Happy Mother’s Day.

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This is what happens when the Minecraft community accepts the challenge – autism, bullying

By on March 31, 2014 in Autism

Hi, I’m AutismFather. Well, that’s what I’m known as in Minecraft. I recently created a Minecraft server for children with autism and their families. Due to its crazy success and the incredible amount of stories from those children about how often they’re bullied, not just in real life but on other Minecraft servers, I put out a challenge to the Minecraft community to speak up and take a stand against bullying on April 2nd, Autism Awareness Day.

Most people seem to believe bullying can’t be stopped and that it’s just a regular part of growing up or that it’s so common place now that it’s a normal part of life. So I figured people would think it’s nice that I want to try and stop it but that it’s really quite pointless.

To be honest, I thought that my plea for help would go largely ignored.

I was wrong.

Support

Support on Twitter

Support on Twitter

Twitter lit up, sharing my blog post and retweeting it far more than I ever expected and then a couple days later, I discovered that it was shared to reddit. I thought to myself that, knowing reddit, I should just not even click because reading the comments there often upsets me. But I was getting a lot of clicks, so I checked it out. To my surprise, it had received over 1200 “up votes” and 200 comments and almost the entirety of it was in support of what I was doing. People opened up about their own experiences with bullying and people were vowing to pitch in and help out. It was awesome!

People told me that bullies would never stop bullying just because I or anyone else asks them too and then I discovered discussions such as this one: http://forum.minecraftpvp.com/t/minecraft-and-autism/46082

Videos are already starting to appear:
https://www.youtube.com/watch?v=sCWH4jRRaJw
https://www.youtube.com/watch?v=vp3I9yL6lpM
https://www.youtube.com/watch?v=xUEekNgbfMs#t=175
(Please give them a thumbs up and/or comment to show support. They’re pretty awesome to do this.)

The Marathon

Created by LapisLauri

Created by LapisLauri

One Saturday, March 29th, 14 different live streaming Minecraft players got together and filled over 12 hours of consistent live video to help support my server (Autcraft) by raising money and also awareness of not just the server but autism in general as well as bullying.

The campaign raised $800 in total for the server but more importantly, got people talking. During several live streams, I joined in to discuss what autism is, why autistics are targeted often by bullies and some of the things to be aware of when you see an autistic on a server, especially if you see them being bullied.

This spurred on more conversations both in the chats of those streams and on forums and twitter (that I saw). It was extremely encouraging to see and be a part of.

Some live stream entertainers went the extra mile, setting benchmarks along the way as AudioModdified danced for the entire “What Does the Fox Say?” song, Tewkesape did 20 sit-ups at one milestone and then “twerked” (or tried to) at another and finally, HypeGameboy shaved his head on camera for all to see when we reached $700.

So I have to include a huge thank you to those that dedicated their time and support in this: Wout12345, MKtheWorst, KohdWing, Wyn, AudioModdified, Hardingboyz, Hype, Pantertainment, Tewkesape, Braveheart1234, TheQxQ, ClasslessDeadra, Glis6, Jarren and OneWolfe.

An even bigger thanks to Graphoniac who came up with the idea and organized the whole thing. This was a huge undertaking that I, personally, will never ever forget and just can’t thank her enough for.

And the biggest thanks goes to those that donated, participated and showed your support. If you listened to any of it, you took the time to just find out what I am all about or what I’m doing, I just can’t thank you enough.

What now?

Well, the money from the marathon is already set and ready to go towards new servers. Our server has some very unique challenges in that survival servers were never really meant to be networked together the way minigame servers are. So we have to solve many problems, have all new plugins developed and most of all, get even more servers. Growing to 3800 people on the whitelist in 9 months has not been cheap and so the money raised is just an incredible life saver for me.

We’re going to continue to be there for these children and their families. We’re going to be there for as long and as many that need us.

And for the fight against bullying in the Minecraft community? Well, this blog post continues to build upon that. I’ve written 2 rather dark posts to help show just how bad the problem really is.

This post, I hope, both counters and adds to those posts by proving that the Minecraft community will not sit idly by and let this happen. Whether people think that bullying is normal in schools or on the Internet or anywhere else, clearly the Minecraft community refuses to accept that it should have any presence on our servers.

This is very encouraging to me. I hope it’s encouraging to you as well.

Help Stop Bullying

Help Stop Bullying

Please, don’t sit back and hope that others will speak up so that you don’t have to. Record a video, write an article, tweet it, share it, get on a server to talk about it… what ever you need to do whether your audience is 10 or 10,000, please don’t ever think that you’re not important enough to make a very real difference and a very real positive change.

This post should prove to you that bullies can change, people will stand up and support you and that lives can be saved. All you need is a keyboard and the passion to see it through.

By doing this on April 2nd, you won’t just be supporting me. Not anymore. You’ll be joining us. All of us. The Minecraft community and the autism community and everyone that has decided that it’s not ok and that it’s time for the bullying to stop.

I’ve always been proud to be a part of the Minecraft community but now I have a whole other level of respect and admiration for this great group of people. We still have a few days to go until April 2nd and already I am seeing changes being made and lives being affected. That’s a very powerful thing.

Big things are happening and I would love for you to be a part of it.

Thank you for your support.

Stuart (aka AutismFather)

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This is a plea to the Minecraft community from the autism community for help on April 2nd.

By on March 19, 2014 in Autism
Creeper On your Dessssssktop 2 by BrotherPrime

Creeper On your Dessssssktop 2
by BrotherPrime

This is a plea to the Minecraft Community from myself and the Autism Community, whether you are with Mojang, or you create videos for Youtube, do live streams or just play on servers with other people, I beg you for just a moment of your time.

Recent studies show that children with autism are 4 times more likely to be bullied than anyone else. And although research can’t ever rate such a thing, I can assure you that the severity of the bullying is far worse as well. These studies are done in schools and playgrounds. But if I were to guess, I’d imagine these numbers to be far, far worse in the Minecraft Community.

I started my server for children with autism less than 9 months ago and in that time, I watched our whitelist skyrocket to over 3600 people. Each of them with the same story… they were bullied on every server they went to.

Just last night, a new player said ‘this is the only server i have found without being judged for being “different”‘.

This is just not ok.

I am a grown man with 2 children of my own. I can’t remember the last time I cried. Maybe when I was 6? But I can honestly tell you, with no shame, that I couldn’t help but cry last night as I had received the 2nd email in less than a week as 2 separate children were reaching out to me because they had a knife in their hand and they were done. They’re hurting themselves, their parents can’t help them, they’re bullied and beaten every single day, they have no friends and they can’t take it anymore. They seek solice with the game they love but on every server they try, they find more of the same. They’re griefed repeatedly, killed constantly and people say the absolute worst, most hurtful things they can say to them. Sometimes it’s even from the server admins.

Each of their messages to me finish the same… “I feel like you’re the only one I can talk to AF”.

Something in me broke. I couldn’t hold it back anymore. It really hurt and I cried.

If I was to average it out, I’d say that I’ve received a message from a different child at least once every week since starting the server 9 months ago. Just 1 child, emailing a server owner, reaching out because they can’t take the abuse anymore, is too many. But once a week for 9 months?

It shouldn’t be like this. We have to do better.

So on April 2nd, Autism Awareness Day, I’m asking… no, I’m begging, the Minecraft Community to stand up with the Autism Community and declare that it’s time to put an end to bullying. Bullying of autistics, bullying of anyone that’s different and bullying in general.

Proclaim it in your livestreams, in your videos, in your blogs, press releases and even on the servers that you go to that bullying is wrong.

And if you see someone being bullied, speak up. Don’t be afraid. You tell them that bullying doesn’t belong here and it’s not going to be tolerated anymore.

Please, I can’t do this on my own anymore. I will always be here for these kids when they need me but they shouldn’t have to need me. They shouldn’t have to come to my server to find someplace safe to play. They shouldn’t have to feel so scared.

The Minecraft community is incredible. I know it, I’ve seen it. I love being a part of it. But we can do better.

Please, as the owner of a server that I wish had never been successful in the first place, that I wish had never been needed to be created in the first place, as a fellow Minecraft player, as a father, as an autistic myself, as the father of an autistic child and as a friend… please help me.

If just one person is bullied just one time less than they would have been before, sure, it might not change the world but it’s a start. It means everything.

Please help. On April 2nd, let’s do better.

On Autism Awareness Day, let’s do more than just raise awareness.

Stuart Duncan (aka AutismFather)
Owner of Autcraft

Comments { 36 }

When you have a teenager sibling that is driving you crazy

By on March 18, 2014 in Autism

frustratedI received a request for advice recently from a rather frustrated sibling who’s brother seemed to be doing well… until he hit puberty. Since then he’s peaked, maybe regressed, diet went downhill and has become aggressive, with yelling and breaking things.

If only I could say that the teenage years are supposed to go smoothly… if only I could say that there was some kind of therapy, or words of wisdom or even a pill that could make it so that everything would settle down and… and be normal. And I’m still talking about a neurotypical teen here. It’s infinitely more complicated with a teenager that has autism. And I’m sorry, I’m so sorry, but you’re going to have to be the strong one and be there for them and ride it out and hopefully go back to how things were on the other side.

The autistic mind is an over active mind. Brain scans will prove it but you just need to be with an autistic for a while to see it. Lack of sleep, constantly obsessing over what they love, needing to stim constantly… there is no off switch. There is no slowing down the activity of an autistic mind.

When puberty hits, as it does for anyone, the chemicals and hormones of a person go radically out of balance and changes start taking place from head to toe. Emotional states shift wildly, the mind goes on overload and the body sends rapid signals too fast for the brain to handle as if it wasn’t already overloaded already.

When your brain is set to speed times 2 and it never turns off and you have to go through all of that… let’s just say that it can be a lot to handle for anyone.

It’s easy to become frustrated with them when it’s been happening for years now, it’s getting worse instead of better and it seems like there is no end. But the teen years are finite. Puberty doesn’t last forever. And as difficult as it is to remember year after year… your teenage autistic sibling is far more frustrated than you are. They have it much worse than you right now.

At the same time, when you have all of that going on and you just wish you could fix it, you just wish you could make them all better, you start to get frustrated with your parents, with the therapists, with the people who make the drugs that are supposed to calm you down, with the teachers… and on and on. Why isn’t anyone helping? Why isn’t anyone trying harder? Why are they doing such stupid things with their dumb ideas and only making things worse?

You have to realize that they care too. And they probably understand what is going on much more than you realize. But they are as frustrated as you are. They just as powerless as you.

I have only two words of advice on this…

First, on their wild roller coaster of emotions and attitudes and outbursts, there will be down times. Times of regret, hurt and defeat. They may be momentary and they may be a lot less frequent than all the other emotional states they will be in but in those moments, they will need their siblings to be their rock. They will need their siblings to be their role model. The ones to see them through this. The ones to never give up on them no matter how hard it gets.

Second, as much as it feels like it will last forever, it really won’t. I won’t lie to you, in all these chemical imbalances and changes, people don’t always come out the other side better off. Sometimes there is regression, especially for those with autism and they may become more secluded. But most often, with someone to see them through it, they stabilize and mature and move beyond that and forever remember the brother/sister that was there for them.

This might not be the advice you’re looking for but honestly, other than learning some coping techniques to handle aggressive behaviors or in handling your frustrations and such, this is just something that you’re going to have to do. You either decide to walk away because it’s too much or you stick it out and you be there for them.

Either way, don’t judge them for it. Certainly don’t hate them for it. This is beyond their control and not something they’d wish on anyone, certainly not themselves and certainly not you.

I leave you with some links that provides more insight on how teens with autism will change, behave, grow and even may give some insight on how to help out.

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When the strongest among us falls

By on September 5, 2013 in Autism

Autism parents. As differing as autism children.

Some go so far as to separate them into labels such as ‘warrior’ or ‘victim’. Some call them ‘special people’ because God only gives ‘special children’ to those types. Others see them as bad parents that let their children ‘get away with stuff’ what they would never have let happen themselves.

We’re just people. Autism parents are people. Same strengths… same… weaknesses…

Earlier, my Facebook timeline began to repeat one name, over and over again. It was the name of a woman that I’ve met on Facebook. It was a woman that I’ve seen in the news. A woman that I’ve had the pleasure to talk to. She’s commented on this blog.

Before you read the news story that everyone was talking about, before you form any opinions on what you think may have happened or start to question what lead to this or anything else, I want you to consider this:

She was one of the strongest autism parents that I’ve met.

http://record-eagle.com/local/x312422563/Charges-loom-for-Benzie-woman-in-murder-suicide-attempt

Another autism parent on Facebook shared a similar link with the caption “I just don’t understand it.” but I do understand it.

Still, I can’t help but to think how fragile, not just life is, but our own self worth, our inner well being and more so than that, our strength to keep it all up.

When the strongest among us falls, how do the rest of us carry on?

The answer came to me, not once, but twice this week as I watched autism parents share their private phone numbers on a not very private Facebook wall so that anyone, it doesn’t matter who, can call them if ever they need someone to talk to.

Now, I don’t condone nor do I think I could ever forgive attempting to take Issy’s life as well (if everything did happen as the reports are saying they did). No matter how hard anything ever got, I could never do anything to hurt my boys.

But I do understand how dark it can get. The first time autism parents shared their phone numbers this week, it was for me.

So how do we carry on? Well, I think all of those incredible autism parents already have the answer: by being stronger than our strongest. And the only way that can happen is with numbers. 2 people are stronger than 1. With enough people, you can balance any weight.

A group at it’s weakest is still stronger than an individual at their strongest.
For an individual will tire eventually, no matter how strong they are.

Which brings me to the last words from the last post on her blog:

There is so much more to say.  I’m just too tired to write more.
All my love,
Kelli
http://thestatuswoe.wordpress.com/2013/09/03/when-a-power-player-takes-you-down/

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